Developmental Disabilities Data

​NCI-IDD is a national effort to measures and improve the performance of public I/DD agencies.

Adult In-Person Survey 2021-22

This survey is based on conversations with adults who receive case management and at least one paid service from the state.

• NCI-IDD In-Person Survey - National Report
  
• NCI-IDD In-Person Survey - Oregon State Report
  

Family Surveys 2021-22

These surveys focus on the experiences of adults and children with I/DD who live in their family's home, and the experiences of the family members who provide services. 

• NCI-IDD ​Family Surveys - National Reports
  
• NCI-IDD Child Family Survey - Oregon State Report
  

State of the Workforce (formerly "Staff Stability Survey")

This survey collects information about Oregon's direct support workers. This includes wage, benefit, turnover and demographic information. 

• NCI-IDD State of the Workforce - National Survey
  
• 2021 NCI-IDD State of the Workforce Survey - Oregon
  
• Previous Oregon-specific data reports, including data for 24-hour providers:
  
• 2020 Oregon Group Home Provider Report
  
• ​2019 Oregon Group Home Provider Report
• 2018 Oregon Group Home Provider Report
• 2017 Oregon Group Home Provider Report and ​Addendum​​​

For additional data, see ​"Oregon Direct Support Professional Workforce Stability" on this page.

Data Highlights

This data comes from the NCI-IDD Adult In-Person Survey and Child Family Survey. Case management entities use the data with their case managers, local advisory committees and policy oversight groups.

• 2024 Q1 Data Highlights​​

Topical Analyses

This report analyzes how participants responded in the 2016–2019 NCI-IDD surveys. Topics included health indicators, case management services, loneliness and housing satisfaction.

• NCI-IDD: Four Topical Analyses (2016-2019)