Text Size: A+| A-| A   |   Text Only Site   |   Accessibility
Department of Human Services
About Us
Organization
Annual Performance Measures

The Northwest Regional Newborn Screening Program screens newborns for endocrine, hemoglobin, cystic fibrosis, and metabolic disorders -- identifying infants who need immediate treatment to prevent developmental problems, mental retardation or death. Identified infants are tracked to ensure they receive appropriate medical care.
 
Newborns routinely have specimens drawn for testing before discharge from the hospital. Specimens are drawn with a heel prick, and the blood spotted on a special filter paper collection kit which is sent to the laboratory for testing. Oregon's Newborn screening kits are provided by the OSPHL upon prepaid request.
 
The program tests more than 320,000 specimens representing more than 180,000 babies each year and is entirely supported by fees.
 
The parents' pamphlet explains the screening program and is distributed when babies are discharged from the hospital. It contains information about the importance of newborn screening as well as the best time for the second specimen to be drawn (10-15 days).
 
The Northwest Regional Newborn Screening Program distributes a Practitioner's Manual to all doctors, midwives, nurse practitioners and laboratorians who work with newborns. It includes information about screening practices, specimen collection, educational services, as well as more information about each of the following disorders:
congenital hypothyroidism
congenital adrenal hyperplasia (CAH)
hemoglobinopathies (sickle cell disease)
cystic fibrosis
biotinidase deficiency  
galactosemia
amino acid disorders (includes PKU) 
fatty acid oxidation disorders 
organic acid disorders
To receive a copy of the Practitioner's Manual, please telephone Leanne Rien, Newborn Screening Nurse Coordinator, at 503-693-4173.
Programs
The Northwest Regional Newborn Screening Program conducts screening of all infants to prevent mental retardation and premature death in children through early detection and treatment of genetic disorders by:
  • Screening for congenital hypothyroidism, congenital adrenal hyperplasia (CAH), hemoglobinopathies (eg, sickle cell disease), cystic fibrosis, biotinidase deficiency, galactosemia, amino acid disorders (includes PKU),  fatty acid oxidation disorders, and organic acid disorders.
  • Serving as the regional center for newborn screening. Six states participate in the regional program (Alaska, Hawaii, Idaho, Oregon, Nevada and New Mexico), along with military facilities in Washington State, California and Korea, and birthing facilities in the Navajo Nation, Guam, Saipan and Kwajalein.
  • Providing medical consultation in partnership with Oregon Health and Science University (OHSU) for the initial follow-up of infants who are diagnosed through the newborn screening program.
 
Learn More
 
Page updated: May 07, 2009

Click here to go to the Oregon Dept. of Veterans' Affairs outreach contact form

Get Adobe Acrobat ReaderAdobe Reader is required to view PDF files. Click the "Get Adobe Reader" image to get a free download of the reader from Adobe.